Bone Infection

Incidence and Timing

For the experience of bone infection, the search terms used were “bone infection” and “infection”.

The duration of time since the osseointegration surgery was reported by four of the 15 respondents, with a median time of 294.5 weeks (proximately 5.5 years). The range in reports was from 21 weeks to 624 weeks.

Symptoms

Respondents described recurrent infections that led to a diagnoses of a bone infection (osteomylitis), a bone infection secondary to a surgery on the bone (fracture, hip replacement) and bone infections that took a long time to diagnose. One respondent reported that they had a deep bone infection that tests did not reveal, but the pain she was experiencing told her it was infected. Only after removing the implant was her extensive infection found. A number of respondents reported their bone infections being chronic infections now.

What People Have Tried

People reported their course of action with a bone infection included antibiotics, steroids, and surgery to remove the implant. Antibiotic therapy included oral antibiotics, IV antibiotics, and one report of antibiotics through a PICC line. Some respondents also shared that they had had their implants removed. A couple of the respondents reported having new OI implants after their infection was eradicated.

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License

OI Symptoms on the Road to Mobility Copyright © by Kirsten Woodend and Kathryn Hawkins. All Rights Reserved.

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