7.11 References & Media Attributions
References
Aleccia, J. (May 15, 2019). ‘Living their values’: Palliative care power couple faces cancer at home. KHN. https://khn.org/news/living-their-values-palliative-care-power-couple-faces-cancer-at-home/
Autiero, A. (July 2, 2020). Human dignity in an ethical sense: Basic considerations. Interdisciplinary Journal for Religion and Transformation of Contemporary Society, 6, 9-21. https://doi.org/10.30965/23642807-00601002
Badcott, D. (May 2003). The basis and relevance of emotional dignity. Medicine, Health Care and Philosophy, 6, 123-131. https://doi-org.ledproxy2.uwindsor.ca/10.1023/A:1024166912191
Blouin, S. (May 23, 2018). ‘Suicide tourism’ and understanding the Swiss model of the right to die. TheConversation.com. https://theconversation.com/suicide-tourism-and-understanding-the-swiss-model-of-the-right-to-die-96698
Bursack, C. (October 29, 2021). When Loved Ones Rally Before Death. Aging Care. https://www.agingcare.com/articles/when-loved-ones-rally-before-death-185452.htm
Canada. (n.d.-a). About medical assistance in dying. https://www.canada.ca/en/health-canada/services/medical-assistance-dying.html
Canada. (n.d.-b). Supreme Court of Canada ruling. https://www.justice.gc.ca/eng/cj-jp/ad-am/scc-csc.htm
Canada. (March 17, 2021). Canada’s new medical assistance in dying law. Government of Canada. https://www.justice.gc.ca/eng/cj-jp/ad-am/docs/MAID_Infographic_EN.pdf
Canada. (March 14, 2023). End-of-life care. https://www.canada.ca/en/health-canada/topics/end-life-care.html
Canadian Hospice Palliative Care Association (CHPCA). (n.d.-a). Historical timeline. https://www.chpca.ca/about-us/
Canadian Hospice Palliative Care Association (CHPCA). (n.d.-b). Milestone in hospice palliative care. https://www.chpca.ca/about-hpc/milestones-in-hospice-palliative-care/#:~:text=The%20first%20hospices%20date%20back,end%2Dof%2Dlife%20services
Canadian Institute for Health Information (CIHI). (2018). Access to palliative care in Canada. https://www.cihi.ca/sites/default/files/document/access-palliative-care-2018-en-web.pdf
Canadian Virtual Hospice. (n.d.). http://virtualhospice.ca/
Canadian Virtual Hospice. (2021). 10 Myths about palliative care. Virtualhospice.ca. https://www.virtualhospice.ca/Assets/10%20Myths%20about%20Palliative%20Care%20-%20Infographic%202021_20211108203352.pdf
Chochinov, H. (May 1, 2002). Dignity-conserving care: A new model for palliative care. JAMA 287(17), 2253–2260. https://jamanetwork.com/journals/jama/article-abstract/194871
Chochinov, H., Hack, T., McClement, S., Kristjanson, L., & Harlos, M. (2002). Dignity in the terminally ill: A developing empirical model. Social Science & Medicine, 54(2), 433-443. https://doi.org/10.1016/S0277-9536(01)00084-3
Collins, A. (November 1, 2017). Five common myths about palliative care and what the science really says. TheConversation.com. https://theconversation.com/five-common-myths-about-palliative-care-and-what-the-science-really-says-82248
Death with Dignity. (n.d.-a) Frequently asked questions. https://deathwithdignity.org/resources/faqs/
Death with Dignity. (n.d.-b). Our history. https://deathwithdignity.org/history/
Dobec, S. (January 21, 2022). Language matters: Why we use the term ‘medical assistance in dying.’ Dying with Dignity.
https://www.dyingwithdignity.ca/language_matters
Dobec, S. (January 12, 2024). Dying wth Dignity Canada: How far we have come. Dying with Dignity Canada.https://www.dyingwithdignity.ca/blog/dying-with-dignity-canada-how-far-we-have-come/
Duong, D. (March 19, 2021). How can Canada safeguard those marginalized by society as MAiD expands? CMAJ News. https://cmajnews.com/2021/03/19/billc7-1095930/
Dying with Dignity Canada. (n.d.-a). Get the facts: Canada’s Medical Assistance in Dying law. https://www.dyingwithdignity.ca/get_the_facts_assisted_dying_law_in_canada
Dying with Dignity Canada. (n.d.-b). https://www.dyingwithdignity.ca
Dobec, S. (January 21, 2022). Language matters: Why we use the term ‘medical assistance in dying.’ Dying with Dignity.
https://www.dyingwithdignity.ca/language_matters
Final days. (n.d.) Cancer Research UK. https://www.cancerresearchuk.org/about-cancer/coping/dying-with-cancer/last-few-weeks-and-days/final-days
Gawande, A. (2017). Being mortal: Medicine and what matters at the end of life. Toronto: Penguin Random House Anchor Canada.
Gentleman, A. (November 18, 2009). Inside the Dignitas house. The Guardian. https://www.theguardian.com/society/2009/nov/18/assisted-suicide-dignitas-house
Get the facts: Canada’s Medical Assistance in Dying law. (n.d.). Dying with Dignity Canada. https://www.dyingwithdignity.ca/get_the_facts_assisted_dying_law_in_canada
Glossary of terms. (n.d.). Compassion and Choices. https://compassionandchoices.org/end-of-life-planning/learn/glossary-of-terms/
Grant, M., Collins, A. & Philip, J. (October 29, 2017). What is palliative care? A patient’s journal through the system. TheConversation.com. https://theconversation.com/what-is-palliative-care-a-patients-journey-through-the-system-82246
Gunderman, R. (January 12, 2015). Last wishes add clear choices: learning how to talk about end-of-life care. The Conversation.com. https://theconversation.com/last-wishes-and-clear-choices-learning-how-to-talk-about-end-of-life-care-35665
Guo, Q. & Jacelon, C. (March 31, 2014). An integrative review of dignity in end-of-life care. Palliative Medicine, 28(7), 931–40. https://doi.org/10.1177/0269216314528399
Hannig, A. (June 2, 2020). Dying virtually: Pandemic drives medically assisted deaths online. TheConversation.com. https://theconversation.com/dying-virtually-pandemic-drives-medically-assisted-deaths-online-139093
Health Canada. (2018). Framework on palliative care in Canada. https://www.canada.ca/content/dam/hc-sc/documents/services/health-care-system/reports-publications/palliative-care/framework-palliative-care-canada/framework-palliative-care-canada.pdf
Ho, A., Car, J., Ho, M-H., Tan-Ho, G., Choo, P., Patinadan, P., Chong, P., Ong, W., Fan, G., Tan, Y., Neimeyer, R. & Chochinov, H. (December 4, 2017). A novel Family Dignity Intervention (FDI) for enhancing and informing holistic palliative care in Asia: study protocol for a randomized controlled trial. Trials, 18(1), 587. https://doi.org/10.1186/s13063-017-2325-5
Holland, T. (March 10, 2023). In a nutshell: The Special Joint Committee on MAiD and Advanced Requests. Impact Ethics. https://impactethics.ca/2023/03/10/in-a-nutshell-the-special-joint-committee-on-maid-and-advance-requests/
Horn, R. & Kerasidou, A. (June 27, 2016). The concept of dignity and its use in end-of-life debates in England and France. Cambridge Quarterly of Healthcare Ethics, 25(3), 404-413. https://doi.org/10.1017/S0963180116000050
La Grassa, J. (May 12, 2023). Windsor’s only hospice for people experiencing homelessness says needs are high. CBC.ca. https://www.cbc.ca/news/canada/windsor/windsor-essex-hospice-homelessness-1.6839886
Leung, D. (2007). Granting death with dignity: Patient, family and professional perspectives. International Journal of Palliative Nursing, 13(4), 170-174. https://doi.org/10.12968/ijpn.2007.13.4.23487
Lowey, S. (October 2020). Models of organized end-of-life care: Palliative care vs. hospice. In Nursing Care at the End of Life: What Every Clinician Should Know. eCampus Ontario. Open SUNY Textbooks.
https://ecampusontario.pressbooks.pub/nursingcare/chapter/models-of-organized-end-of-life-care-palliative-care-vs-hospice/
Lupton, A. (October 26, 2021). Funeral homes pivot to offer rooms for medically assisted deaths. CBC News. https://www.cbc.ca/news/canada/london/funeral-homes-pivot-to-offer-rooms-for-medically-assisted-deaths-1.6224353
MAiD House. (n.d.). https://www.maidhouse.ca
McGillivray, K. (October 31, 2021). Medically assisted death nonprofit says fear is hampering its search for permanent space. CBC News. https://www.cbc.ca/news/canada/toronto/medically-assisted-death-nonprofit-says-fear-is-hampering-its-search-for-permanent-space-1.6230573
Meier, E., Gallegos, J., Montross-Thomas, L., Depp, C., Irwin, S., Jeste, D. (April 2016). Defining a good death (successful dying): Literature review and a call for research and public dialogue. American Journal of Geriatric Psychiatry, 24(4): 261–271. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4828197/pdf/nihms768333.pdf
Moulder, V. (June 21, 2024). When a hospital denies MAiD: A forced transfer story. https://www.dyingwithdignity.ca/blog/when-a-hospital-denies-maid-a-forced-transfer-story/
Moura, C. (January 25, 2021). Dear Grandma. Canadian Medical Association Journal, 193(4). https://www.cmaj.ca/content/cmaj/193/4/E139.full.pdf
National Institute on Aging. (May 14, 2021). What are palliative care and hospice care. https://www.nia.nih.gov/health/what-are-palliative-care-and-hospice-care
Ontario. (n.d.). Medical Assistance in Dying. Ministry of Health. https://www.ontario.ca/page/medical-assistance-dying-and-end-life-decisions-support-medical-professionals
Ontario. (December 2021). Ontario Provincial Framework for palliative care. Ministry of Health. https://tinyurl.com/dfap2zwv
Oregon. (n.d.). Frequently asked questions.
https://www.oregon.gov/oha/ph/providerpartnerresources/evaluationresearch/deathwithdignityact/pages/faqs.aspx
Oregon Health Authority. (March 8, 2023). Oregon Death with Dignity Act: 2022 Data Summary. Public Health Division. https://www.oregon.gov/oha/PH/PROVIDERPARTNERRESOURCES/EVALUATIONRESEARCH/DEATHWITHDIGNITYACT/Documents/year25.pdf
Parliament of Canada. (March 17, 2021). An Act to amend the Criminal Code (medical assistance in dying). https://www.parl.ca/LegisInfo/en/bill/43-2/C-7
Powell, J. (May 15, 2015). The social philosophical dimensions of hospice care. International Letters of Social and Humanistic Sciences, 52, 76-80. https://www.ssoar.info/ssoar/bitstream/handle/document/57297/ssoar-ilshs-2015-52-powell-The_social_philosophical_dimensions_of.pdf?sequence=1
Presern, E. (May 10, 2021). Palliative care: Is it time for health professionals to talk openly about psychedelic therapy? British Journal of General Practice, 71(708) 318-319. https://bjgp.org/content/bjgp/71/708/318.full.pdf
Roehr, B. (September 10, 2021). Assisted dying around the world. BMJ, 374. http://dx.doi.org/10.1136/bmj.n2200
Social Care Institute for Excellence (SCIE). (August 2020). A dignified death. https://www.scie.org.uk/dignity/care/death
Sodha, S. (May 12, 2023). Portuguese parliament legalizes euthanasia after long battle. The Guardian. https://www.theguardian.com/world/2023/may/12/portuguese-parliament-legalises-euthanasia-after-long-battle
Supreme Court of Canada. (February 6, 2015). Supreme Court judgements. https://scc-csc.lexum.com/scc-csc/scc-csc/en/item/14637/index.do
The countries where euthanasia is legal. (September 22, 2021). The Week. https://www.theweek.co.uk/102978/countries-where-euthanasia-is-legal
Ubel, P. (September 11, 2013). A debate on death with dignity. Forbes. https://www.forbes.com/sites/peterubel/2013/09/11/a-debate-on-death-with-dignity/?sh=271431f6a0e4
Wilhelm, T. (August 24, 2018). Windsor’s first death doula helps people plan their exits. Windsor Star. https://windsorstar.com/news/local-news/windsors-first-death-doula-helps-people-plan-their-exits#:~:text=Whether%20it’s%20planning%20a%20living,help%20people%20do%20dying%20right.
Wilkinson, D. & Savulescu, J. (April 27, 2021). End-of-life care: People should have the option of general anaesthesia as they die. TheConversation.com. https://theconversation.com/end-of-life-care-people-should-have-the-option-of-general-anaesthesia-as-they-die-159653
Williams, A., Kelley, M., Dykeman, S. & DeMiglio, L. (February 2010). A timeline of hospice palliative care policy and practice in Ontario, Canada. Canadian Institute of Health Research. https://www.virtualhospice.ca/Assets/HPC%20Evolution%20in%20Ontario_Report_April_2010_20120709110648.pdf
Wilson, D., Cohen, J., Eliason, C., Deliens, L., MacLeod, R., Hewitt, J., & Houttekier, D. (August 22, 2019). Is the bereavement grief intensity of survivors links with their perception of death quality? International Journal of Palliative Nursing, 25(8), 398-405.
https://doi.org/10.12968/ijpn.2019.25.8.398
Media Attributions
Anand, M. (March 14, 2020). Old couple holding hands in hospital [Photograph]. Pexels. https://www.pexels.com/photo/old-couple-holding-hands-in-hospital-3934328/
Canadian Partnership Against Cancer. (June 25, 2018). In-home palliative care: Marie’s story [Video]. YouTube. https://youtu.be/HBenNG7xoVY
Canadian Virtual Hospice. (n.d.). Indigenous voices: Caring for the patient and family [Video]. Vimeo. https://vimeo.com/140868833
Canadian Virtual Hospice. (January 21, 2008). Canadian Virtual Hospice palliative care video [Video]. YouTube. https://youtu.be/ZWLoQkJD0WA
CompassionChoices. (October 29, 2014). Brittany Maynard — A video for my friends [Video]. YouTube. https://youtu.be/1lHXH0Zb2QI
Covenant Health Canada (October 3, 2019). What is palliative care [Video]. YouTube. https://youtu.be/Mc5ImaOciR4
Death with Dignity Canada. (n.d.). Death with Dignity Canada logo [Photograph]. https://www.dyingwithdignity.ca
Dig Deeper. (July 12, 2017). Supreme Court of Canada in Summer [Photograph]. Wikimedia Commons. https://commons.wikimedia.org/wiki/File:Supreme_court_of_Canada_in_summer.jpg
Dying with Dignity Canada. (April 15, 2024). In my own time [Video]. YouTube. https://youtu.be/aTLMJ6PSyWo?si=l0ULvMVuizjrDEZ7
Fujita, N. (2022). The Hospice of Windsor and Essex County [Photograph].
King 5. (March 12, 2018). Oregon couple chooses ‘death with dignity’ on same day [Video]. YouTube. https://youtu.be/kTCZOiabEYw
Pixabay. (February 11, 2016). 2 Persons holding hands [Photograph]. Pexels. https://www.pexels.com/photo/hands-people-friends-communication-45842/
RODNAE Productions. (December 8, 2020). Person in blue scrub suit holding the hand of a patient [Photograph]. Pexels. https://www.pexels.com/photo/person-in-blue-scrub-suit-holding-the-hand-of-a-patient-6129685/
Shared Wisdom Network. (October 12, 2022). Living & dying: A love story (Full documentary) [Video]. YouTube.com. https://youtu.be/K7WYimyuvE8?si=uNRnw7PYFxnmcHv7
TED. (September 30, 2015). What really matters at the end of life | BJ Miller [Video]. YouTube. https://youtu.be/apbSsILLh28
The Fifth Estate. (August 11, 2016). Assisted suicide: The life and death of Gloria Taylor [Video]. YouTube. https://www.youtube.com/watch?v=7blnXINYTOM
The New Yorker. (June 23, 2021). Documenting her wife’s death on social media [Video]. YouTube. https://youtu.be/1i-TvqmjsBw
Wdwdbot. (September 5, 2015). DignitasLogo [Photograph]. Wikimedia Commons. https://commons.wikimedia.org/wiki/File:DignitasLogo.jpg
Cover Photo: Prachatai. (September 22, 2016). Palliative care [Photograph]. Flickr. https://www.flickr.com/photos/prachatai/48917684353